My parents met with the medical team yesterday. On January 6, Paul will have an MRI to check his optic nerve and to hopefully determine a visual prognosis. The following day, he will have surgery to repair the air leak in his brain. He has to have part of his skull removed and they will be removing some tissue from his thigh to fill the area in his brain. After the procedure, they have to wait for the muscle to shrink before they put the bone back in his head. The doctor has told my parents that he will be able to fly home three weeks after the operation and this is very good news.
Paul is still struggling with a diminished appetite. He does not want to eat much at all and is losing a lot of weight so they will be increasing his PEG tube feeds. He continues to progress with communication. He has been talking about his next surgery and acknowledges that it involves his head, but he does not ask why or what is being done. He is walking well and was able to shave independently with an electric razor. He can also brush his teeth, but still tires very easily and sleeps a lot. We are very please to have recieved this new timeline because we were previously told that it may be another two months before he could return home.
My folks want to again express their gratitude for all of the letters and support.
Tara
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